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Pre-Conference Symposium

Pre-Conference Symposium

International Niemann Pick Disease Symposium

7th September 2017  14:00-18:00

Time

Content

13:30-14:00

Meeting Registration

14:00-14:15

Introductory Session

Chair:  Jim Green President INPDA

Welcome on behalf of INPDA

Meeting – Structure and Objectives

14:15-15:45

Session 1: Niemann Pick Diagnosis

Current practice: NPD diagnosis in the US/Europe (20-30 min)

Current practice: NPD diagnosis in China (20-30 min)

Questions and discussions (30 min)

15:45-16:15

Tea Break

16:15-17:45

Session 2: Clinical Management

Clinical management of ASMD (30 min)

Clinical management of NPC (30 min)

Questions and discussions (30 min)

17:45-18:00

Conclusions and closing remarks  


Confirmed Speakers:

   Marc Patterson, M.D.Chair, Division of Child and Adolescent Neurology, Mayo Clinic Children's Center, USA

   Teresa Wu, Principal Clinical Scientist, Manchester University Hospital Trust, Deputy Director at Willlink Biomedical Genetics, UK

   Huiwen Zhang, Clinician, Shanghai Xinhua Hospital, China

Target Attendees:

   Treating Physicians for Niemann-Pick Disease, and/or Hereditary Metabolic Rare Disorders

   Policy makers, management team of Niemann-Pick or rare disease patient organizations, industry representatives 

International Niemann Pick Disease Symposium

   Registration Fee: 40 Euro per attendee( Only for the Symposium, not including the following three-day Conference)

   Note: The Symposium is free for the applicants who have registered the conference

   Registration Method: Please log in the conference website, enter the “personal Centre” and Click the special column International Niemann Pick Disease Symposium on the left to register

COUNTDOWN
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Key Dates

Date

September 7-10, 2017

Abstract Submission Deadline

July 19, 2017

Online Registration Deadline

September 3, 2017

On-site Registration Dates

September 7, 2017